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Nature - Data sharing was a core principle that led to the success of the Human Genome Project 20 years ago. Now scientists are struggling to keep information free.
Microsoft Excel: 1 — Human Genetics: 0.
First GEDmatch, the DNA database that helped identify the Golden State Killer, was hacked. Then email addresses from its users were used in a phishing attack on another leading genealogy site.
Ben Williamson ponders the controversy of using genetic data from students to personalize education.
The did so by tracing the suspect via distant relatives’ DNA
The spreadsheet software Microsoft Excel, when used with default settings, is known to convert gene names to dates and floating-point numbers. A programmatic scan of leading genomics journals reveals that approximately one-fifth of papers with supplementary Excel gene lists contain erroneous gene name conversions.
A huge project unexpectedly led to a way of finding disease genes without needing to know about diseases.
Changes clarify procedures for telling participants in NIH-funded studies how their data might be used.
Proposed class-action suit says Family Tree violated Alaska Genetic Privacy Act.
The genetic-testing company's real goal is to hoard your personal data
The importance of data sharing has become a mantra within the science research community. However, sharing has not been as easy (or as readily adopted) as advocates have suggested. Questions of privacy, individual scientist’s rights to their research, and industry-academia divides have been significant hurdles. This article looks at the history of the debates and problems associated with data access that occurred during the ‘human genome wars’ and their aftermath as a way to explore some of the challenges facing diverse research communities.
Scientists recant in ethics row over publishing DNA genome of research's unwitting heroine